I don’t like reposting other
people’s blogs because it seems the lazy thing to do. But I’ve been following
this family’s story since March and thought it was time to share it.
Click here for the first link that
chronicles Baby Annalise entering this world and her first week. It is a long
post, but you can skim it if you need to.
Annalise has hydranencephalus
and hydrocephalus. From another of her mom’s blog posts: Hydrancephaly is where the brain’s cerebral hemispheres are absent to
varying degrees. So from what we understand right now, Annalise does have brain
tissue and her hemispheres. It’s just that the ventricles, where the fluid is
stored, were larger than they should be when formed. So the brain had to form
around the ventricles in a sense. Because of this, the fluid was building up so
much that it just pushed the tissue to the outer rims. All that to say, the
brain is somewhat there, it just isn’t fully formed. Her brainstem and
cerebellum are completely developed though which is why she is doing so well.
And from another post: Hydrocephalus
is the excess fluid in the brain. This is the cause and reason for her
abnormally large head.
The first pictures of
Annalise haunted me at first, but as I have followed her story and watched her
grow, I can see how precious and beautiful she is. I share her story to remind
you that each life matters and each baby brought into this world, each baby
conceived, is a gift from God. Also, if you have read about her, you will realize what a miracle she is; she wasn't expected to live more than a few hours. She is now five months old!
In the more recent posts of
Annalise here, you can see how adorable she has become. You can also follow her
progress on her parent’s Facebook page.
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